Talking to Camps About Your Child’s Neurobehavioral Difficulties: A Guide for Parents
With summer right around the corner, many parents are actively exploring summer programs for their children. As a child psychologist, one of the more common questions that I hear from parents during this process is, “What, if anything, should I tell my child’s counselor/camp about his/her neurobehavioral problems?” For many parents, a tension exists between wanting to make their child’s camp experience a positive one and at the same time worrying that telling a camp about their child’s vulnerabilities will somehow be stigmatizing. Although one size never fits all in the world of children with neurobehavioral difficulties, the following guidelines may serve as useful pointers:
1. Be proactive — Ask questions
Before making a final selection on a camp, you should be prepared to ask very specific questions about how the camp is run. Find out who will be working with your child, how old they are, what kind of training they have had and how behavior problems are handled. The following questions also are helpful to ask: How much structure does the camp provide? What is their daily routine? What is the adult: child ratio? How many children share a cabin together? Has the camp worked successfully in the past with children who have had similar difficulties? What kinds of options exist for a one-on-one aide? What is the camp’s philosophy? Is it competitive? If camp personnel are unable to answer these questions to your satisfaction, it is probably not the best place for your child.
2. Define the problem
Most good camps will want to know as much as possible about your child’s strengths and vulnerabilities. Generally speaking, knowledge is empowering. Give the staff a true and honest account of your child’s special needs (e.g., level of inattention/hyperactivity; motor problems; language problems; trouble with peers; sensory issues; previous experience with camp, medications). Make sure they know this is something you consider to be important. You can help educate the staff by spending time with them and answering and asking questions before you drop off your child. Rather than simple giving a label that is open to interpretation, it is often more helpful to provide specific behaviors that your child is likely to exhibit. For instance, instead of just saying “My child has ADHD,” it may be more helpful to say, “My child has ADHD, which means that his ability to pay attention for extended periods is not as strong as others his age.”
3. Offer ideas
When discussing your child’s special needs, offer some easy to implement strategies that you have found to be helpful. Enlist help from your child’s teachers and other specialists (e.g., speech/language, therapist, psychologist, occupational therapist). At the same time, provide some predictions about what types of activities at camp may be the most challenging for your child (e.g., unstructured time, overstimulating activities, getting dressed after swimming, lunch) so that the counselor can take a proactive stance. Remind the counselor about the importance of positive reinforcement, close supervision, and appropriate boundaries and consequences.
4. Provide references
Don’t assume that camp staff will understand exactly what your child’s neurobehavioral disorder entails. Provide some simple and direct printed information stating what the problem is and how it may manifest at camp. (Staff at RNBC can help you with this information.) It is considerably more likely that teenage counselors will read a one-page summary than a book and a mountain of papers. If your child is taking medication and will be attending sleep-away camp, be sure to provide the phone number of the child’s prescribing physician. In addition, provide the staff with a list of emergency phone numbers and email addresses, and make sure they know how to reach you at all times during your child’s camp stay. You may even want to sign a release for your child’s specialist to speak with particular camp staff, such as his/her therapist.
5. Keep in touch
Check in with your child’s counselor on a regular basis to see how things are going. Give them permission to tell you about any problems right away, and work collaboratively with them to resolve the situation. If counselors are willing, send a report form that lists desirable behaviors that can be checked off and returned to you each day. Be sure to read any information sent home from camp and respond promptly with questions.
The following list includes some camps that offer specialized programs for children with neurobehavioral difficulties:
Camp STAR www.jcys.org/campstar
Camp Hug the Bear (autism spectrum disorders-NSSRA)
Cove/Hyde Park Day School-summer reading and math programs
Camp Neeka (Josselyn Center, IL)
Julie Herr & Associates www.julieherr.com (Chicago, IL)
Camp Firefly www.campfireflyjcfs.com
Hidden Valley Camp (Maine) www.hiddenvalleycamp.com
The Learning Camp (www.learningcamp.com) Vail, CO
Camp Buckskin (www.campbuckskin.com)
Wolfeboro: The Summer Boarding School www.wolfeboro.org
Summit Camp www.summitcamp.com
Rush University Medical Center also maintains a web-based resource which includes camp information. The direct link to the summer camps is http://www.rush.edu/rumc/page-1234554460333.html
Disclaimer
There may be camps other than those identified in this article that would be suitable for this patient population. None of the camps identified in this article are owned by, affiliated with, related to or agents of Rush University Medical Center.